FUNCAP functional capacity questionnaire

FUNCAP27: a patient-informed measure of what activity costs you

FUNCAP is a functional capacity questionnaire built for ME/CFS. It was created by researchers working with the Norwegian ME Association, shaped by feedback from thousands of patients, and validated in more than 2,600 people with ME/CFS. It was published open access in 2024.

Most questionnaires ask how bad your symptoms feel. FUNCAP asks what activities cost you. If you shower, hold a conversation, or go to a shop, how much does that limit what else you can do that day and in the days after? This captures the "payback" pattern of ME/CFS that ordinary disability scales miss. It also works at every severity level, including for people who are housebound or bedbound.

This is the short FUNCAP27 version: 27 activities in eight groups, each scored 0 to 6 for an average day over the past month. It takes 5 to 10 minutes. You get an overall score, a profile by activity group, and a list of your most costly activities. Your answers stay on your device. No sign-up is needed.

For a quick single-number check you can repeat often, use the Bell CFIDS Disability Scale. For ME/CFS symptom screening, use the DSQ-Brief or the full DSQ-2. If your illness followed COVID-19, the Post-COVID-19 Functional Status scale is a quicker, simpler grading.

This is not a diagnostic tool. FUNCAP measures functional capacity; it does not diagnose ME/CFS or any other condition. Discuss your results with your doctor or specialist. Based on: Sommerfelt K, Schei T, Seton KA, Carding SR. Assessing Functional Capacity in ME/CFS: A Patient-Informed Questionnaire. J Clin Med. 2024;13(12):3486 (CC BY 4.0). See funcap.no for the authors' resources.

Base your answers on an average day during the last month, not the worst nor the best. If you have not done an activity (for example showering standing up, because you always shower seated), score how you think it would have affected you. Each item includes whatever is needed to do it: "going to a shop for groceries" includes getting dressed and travelling. It can help to answer with someone who sees you day to day.

What are the consequences for you if you perform the activities below?

  1. 0 I cannot do this
  2. 1 My capacity will be severely reduced for at least three days
  3. 2 I can do little else on the same day and for one to two days afterwards
  4. 3 I can do little else on the same day
  5. 4 I must limit other activities on the same day
  6. 5 This rarely affects other activities
  7. 6 Unproblematic – does not affect other activities

A Personal hygiene / basic functions

Using the toilet (not bedpan or bedside commode)

Showering standing up

Getting dressed in regular clothes

B Walking – moving around

Walking a short distance indoors, from one room to another

Walking between approx. 100 m and 1 km on level ground (length of 1 to 10 football fields)

Physical activity with increased heart rate, for approx. 15 min

C Being upright

Sitting in bed for approx. ½ hour

Sitting in an upright chair (dining chair) with feet on floor for approx. 2 hours

Standing up for approx. 5 minutes, e.g. while queuing or while cooking

D Activities in the home

Heavier housework (washing floors, vacuuming etc.) for approx. ½ hour continuously

Cooking a complicated meal from scratch, approx. 1 hour of preparation

E Communication

Having a conversation for approx. 5 minutes

Participating in a conversation with three people for approx. ½ hour

Participating in a dinner party, party or family event

F Activities outside your home

Stepping right outside your home

Going to a shop for groceries

Using public transport (bus or train)

Participating in organized leisure activities such as classes, sports etc.

G Reactions to light and sound

Staying in a room with normal lighting, without sunglasses, for approx. 1 hour

Staying outdoors in daylight without sunglasses for approx. 2 hours

Staying in a noisy environment (shopping mall, café or open plan office) for approx. 1 hour

H Concentration

Reading a short text, such as a mobile phone text message

Reading and understanding a non-fiction text, such as an official document one A4 page long

Using social media to stay in touch with others

Focusing on a task for approx. 10 minutes continuously

Focusing on a task for approx. 2 hours continuously

Managing a full working day (non-physical work such as office work, classes or lectures)