Questionnaires and tools

ME/CFS, fatigue and post-exertional malaise

• ME/CFS screening (DSQ-Brief)

  A 4-question self-check for ME/CFS based on the DePaul Symptom Questionnaire Brief. Asks about fatigue, tiredness after minimal exercise, unrefreshing sleep and memory problems, in under two minutes, with an immediate result.

• DePaul Symptom Questionnaire (DSQ-2)

  All 79 DSQ-2 symptom questions, checked against four ME/CFS case definitions (IOM, CCC, ME-ICC, Fukuda) with DePaul's published rules, plus a symptom profile. About 100 answers; progress is saved.

• Post-exertional malaise (DSQ-PEM)

  The DePaul PEM short form: 10 questions characterising whether your post-activity symptom pattern looks like post-exertional malaise, with recovery time and triggers assessed.

• Chalder Fatigue Scale (CFQ-11)

  The 11-item fatigue questionnaire used across UK ME/CFS and long COVID services. Get your Likert score (0–33) with physical and mental subscales, plus the bimodal score (0–11) and its ≥4 threshold.

• Fatigue Severity Scale (FSS)

  9-item fatigue questionnaire widely used in post-viral and chronic illness research. Simple and quick to complete.

Function and daily life

• FUNCAP functional capacity questionnaire

  The patient-informed ME/CFS functional capacity instrument (FUNCAP27): 27 activities across 8 domains, scored by what each activity costs you. Includes a domain profile.

• Post-COVID-19 Functional Status scale (PCFS)

  The standard long COVID functional grading: four quick questions give you a grade from 0 (no limitations) to 4 (severe limitations). Takes under a minute; designed for repeat tracking.

• Bell score (Bell CFIDS Disability Scale)

  Functional capacity score from 0 to 100, widely referenced in ME/CFS and post-viral communities. Quick self-check for functional status.

• RAND-36 health survey (SF-36 items)

  The classic 36-item health-related quality of life survey, scored across eight scales. Compare your profile against published ME/CFS and long COVID cohorts.

Dysautonomia and POTS

• COMPASS-31

  Composite Autonomic Symptom Score: 31-item autonomic symptom questionnaire covering six domains. The standard screening tool for dysautonomia symptoms.

• Malmö POTS Symptom Score (MAPS)

  The first symptom score designed specifically for POTS: 12 symptoms from the past week rated 0–10, with the validated ≥42 threshold explained. Well suited to weekly tracking.

• Vanderbilt Orthostatic Symptom Score (VOSS)

  Nine symptoms rated 0–10 while upright, as used in POTS drug and compression trials. A snapshot of orthostatic symptom burden that pairs with the NASA lean test.

• Orthostatic Grading Scale (OGS)

  The Mayo Clinic five-item grading of orthostatic intolerance: frequency, severity, triggers, daily activities, and standing time, scored 0–20 with mild, moderate, and severe bands.

• NASA Lean Test guide

  Interactive guide

  Interactive guide and timer for performing a poor man's tilt table test at home, with fields to log your HR readings at each stage.

Breathing

• Nijmegen Questionnaire

  16-item breathing pattern disorder screening tool. Used to identify hyperventilation syndrome and disordered breathing patterns.

• Self-Evaluation of Breathing Questionnaire (SEBQ)

  25 statements about how your breathing feels, scored out of 75. The breathing-specific companion to the Nijmegen questionnaire, better suited to restricted or effortful breathing patterns.

Brain fog, sleep and pain

• Cognitive Failures Questionnaire (CFQ)

  Broadbent's 25-item measure of everyday memory, attention, and action slips: the standard brain fog questionnaire. Scored out of 100 with three subscales and reference values from long COVID and ME/CFS cohorts.

• Epworth Sleepiness Scale

  8-item daytime sleepiness questionnaire. Simple, widely used, and commonly searched by people with fatigue-related conditions.

• 2016 ACR Fibromyalgia Survey

  Self-report fibromyalgia screening questionnaire with Widespread Pain Index, Symptom Severity Scale, and FS severity score. Based on the 2016 revised ACR criteria.

Hypermobility

• Beighton Score

  9-point self-assessment for generalised joint hypermobility, with an illustration for each manoeuvre and the age-adjusted threshold explained. One component of the 2017 hypermobile EDS criteria.

• Five-part questionnaire for hypermobility (5PQ)

  Five yes/no questions that screen for generalised joint hypermobility, including hypermobility you used to have. Two or more "yes" answers is positive; used in the 2017 hEDS criteria when the Beighton score is one point short.

• hEDS diagnostic criteria checker (2017)

  Criteria checker

  Walk through the three criteria for hypermobile Ehlers-Danlos syndrome step by step: Beighton and 5PQ, the 12 Feature A signs, family history, musculoskeletal features, and the exclusions only a clinician can confirm.

Wellbeing

• WHO-5 Well-Being Index

  Five positively-worded questions about the past two weeks, scored 0–100. A light-touch well-being measure that pairs well with symptom and function tracking.

• Satisfaction with Life Scale (SWLS)

  Diener's five-statement measure of how satisfied you are with your life as a whole, scored 5 to 35 with the standard bands. Under a minute; a stable companion to the WHO-5.

• Brief Resilience Scale (BRS)

  Six statements about how quickly you bounce back from stress, scored 1 to 5 with low, normal and high bands. Measures recovery itself, not coping resources; illness lowers it, and it moves as things change.

• AUDIT alcohol screening test

  The WHO's ten-question alcohol screen, scored 0 to 40 with the risk zones and a consumption, dependence and harm breakdown. Relevant to sleep, HRV and orthostatic symptoms, and before starting medication.

Activity, pacing and exercise

• Exercise readiness screen

  Interactive guide

  Three quick checks before starting any movement plan: red flags, post-exertional malaise, and relevant comorbidities. Routes you to the page that fits your situation.

• Pacing and heart rate ceiling

  Interactive guide

  The energy envelope in plain language, a resting-heart-rate-based ceiling with the arithmetic shown, counter-pressure manoeuvres, and a private session log.

• Exercise progression for orthostatic intolerance

  Interactive guide

  A hold-by-default record keeper informed by the CHOP modified Dallas programme and Levine's protocol. You pick the tier; it keeps the record and asks how you were 48 hours later.

• IPAQ short form

  The International Physical Activity Questionnaire: days and minutes of vigorous activity, moderate activity and walking over the last 7 days, plus sitting time. Gives MET-minutes per week and a category. A record, not a target.

• Godin-Shephard Leisure-Time Exercise Questionnaire

  Three questions on weekly strenuous, moderate and mild exercise, giving a Leisure Score Index with Godin's 2011 bands. One minute; useful for recording what you actually did week to week.

Trackers

The HRV tracker runs in your browser and keeps its data on your device. The others are Google Sheets templates: use File → Make a copy to get your own editable version.

• HRV and resting heart rate tracker

  Browser tracker

  Log daily readings in your browser, or import a CSV from Garmin, Oura, Whoop or a spreadsheet. Rolling 7-day and 30-day medians with trend charts. Stored on your device only.

• Symptom diary

  Google Sheet

  Daily scores for fatigue, breathlessness, head pain, and cognitive function with rolling averages. Useful for identifying patterns and tracking trends.

• Stand test logger

  Google Sheet

  Record and track orthostatic heart rate responses over time. Log HR at baseline, 2 min, 5 min, and 10 min standing.